Country Star Glen Campbell Dies of Alzheimer’s

glen campbell

Glen Campbell, country star in the 1960s-70s and known for his music and comedy variety show The Glen Campbell Goodtime Hour on CBS, died on August 8 due to Alzheimer’s. Campbell made history by winning four Grammys in the country and pop categories in 1967. He sang such songs as “Rhinestone Cowboy,” “Galveston,” and “Wichita Lineman.” Campbell also appeared in a supporting role in the film True Grit (1969) and sang the title song for the film. Sadly, in 2011, Campbell was diagnosed with Alzheimer’s. Rather than retreating, Campbell bravely went on a farewell tour in 2011-12 that dealt with his illness and decline.

This tour was the subject of an award-winning 2014 documentary titled “Glen Campbell…I’ll Be Me.” The film documented his decline with Alzheimer’s, how his band supported him on stage when he forgot the chords and how his fans finished the song when he forgot the lyrics. Despite his illness, Campbell remained happy and upbeat. His family became his caregivers, and the film shows how the family helped Campbell navigate places that had once been familiar to him, such as his home, the stage, and the recording studio. 

Campbell courageously advocated for Alzheimer’s awareness and helped to remove some of the stigma associated with the disease. After the film aired, Director James Keach said people came up to him “who had family members or themselves had Alzheimer’s who said, ‘I no longer feel ashamed.'” His daughter, band mate, and caregiver, Ashley Campbell, said she was glad her father’s honesty about Alzheimer’s helped so many people to “not feel so alone.”

More than 5 million Americans suffer from Alzheimer’s, and every 66 seconds someone develops Alzheimer’s. You can help advance Alzheimer’s support, care, and research by participating in the Walk to End Alzheimer’s.

 

Source: ABC News “Glen Campbell’s Public Alzheimer’s Battle Set His Legacy” by Kristin M. Hall
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INvestABLE

investable

Last year, we highlighted a new provision offered to families with disabled children called ABLE accounts. ABLE accounts (which stands for Achieving a Better Life Experience) are intended to create tax-free savings accounts for individuals with disabilities. The goal of these accounts is to ease the financial strains faced by individuals with disabilities and their families. These accounts supplement, rather than replace, the benefits someone may already be receiving, such as through private insurance, Medicaid, or other sources.

Now, Indiana has received the state funding to implement and create this program under the name INvestABLE. The new INvestABLE program helps disabled individuals to save money while preserving their government-assisted benefits like SSI and Medicaid. The earnings on your investments are federally tax-deferred and tax-free if used for qualified disability expenses. Qualified disability expenses include any expense incurred as a result of living with a disability and that is intended to improve your quality of life. This would include things such as education, health and wellness, housing, transportation, legal fees, financial management, employment training and support, adaptive technology, personal support services, oversight and monitoring, and funeral and burial expenses.

Previously, individuals were required to keep their resources under $2,000 to qualify for SSI and Medicaid. With the ABLE accounts, an individual can save up to $14,000 per year and up to $100,000 total in the account. Balances of $100,000 or less are excluded from your SSI resource limit. Only the amount over $100,000 is counted against your limit.

You can open an ABLE account quickly and easily here. Just tell them a little bit about yourself and select your investments. That’s it. You can easily access your account at any time, from a PC, tablet, or mobile device. Plus, you can get started with as little as $25.

In celebration of this new program, the Indiana Treasurer of State and the Indiana ABLE Authority will be hosting a launch event in Fort Wayne at the Turnstone Center on August 30.

New Change for Special Needs Trusts

special-needs-trusts

On December 13, 2016, the President signed into law the 21st Century Cures Act. Section 5007 of this Act affects the Special (or Supplemental) Needs Trusts, dealing specifically with the d(4)(A) Special Needs Trusts. A d(4)(A) Special Needs Trust is a trust created for the sole benefit of someone under the age of 65 who is disabled. The d(4)(A) Special Needs Trust is established by the beneficiary’s parent, grandparent, legal guardian, or the court, and it is funded with the beneficiary’s own assets.  This type of trust must include repayment language, which states that any remaining assets at the beneficiary’s death must go to any state Medicaid agency (up to the amount paid by the state for the beneficiary under the Medicaid program).

For d(4)(A) Special Needs Trusts created before December 31, 2016, the trust has to meet the following requirements to be valid:

  • The trust contains the assets of an individual who is under 65 and disabled.
  • The trust is established for the benefit of the individual through the actions of a parent, grandparent, legal guardian, or a court.
  • The State will receive the remaining amount in the trust after the individual dies up to an amount equal to the total Medicaid assistance paid on their behalf.

With the new Act signed into Law, an additional provision has been added to the requirements for d(4)(A) Special Needs Trusts (dated after December 31, 2016). Now, the trust can be established for the benefit of the individual through the actions of the individual, parent, grandparent, legal guardian, or a court. All other requirements still apply. This is good news for those who may utilize this type of trust for their disabled loved ones! Our firm specializes in Trusts and Estates. We would be happy to help you create this trust for yourself or a loved one who is under 65 and disabled.